So over the last few months things have not been great. I've recently been diagnosed with Epilepsy and to say it was a shock would be an understatement.
I had my first seizure in May and scared the crap out of the family. I then went through some testing and conversations with a neurologist and got the diagnosis based on the seizure and the episodes of deja vu that I have been getting for a few years being considered as focal temporal seizures as well. I've been put an a medication, that I'm slowly ramping up the dosage on, as apparently one of the side effects of taking to much too quick is a fatal rash. I'm not sure how rashes can be fatal but I'm also not willing to find out so slow and steady we go. I was thinking things were going in the right direction but alas I had another seizure in September and this one didn't happen when I was already laying down so injury came with it. I was also home alone with the second one and was found later laying on the floor, foaming at the mouth, and no recollections of how that happened at all. I must have hit the ground very hard though as I got a bump on the head that is still sore over a week later, a bruised shoulder and arm, and a probably cracked collarbone.
The sad part is that my total medical response from the neurologist after the second seizure was to have her receptionist call me and say just keep taking the pills. I realize that they are very busy and the patient to doctor load is very high but it's like they forget that this isn't my everyday like it is theirs and I'm concerned and scared and would like to actually speak to someone, especially when they were the ones who said if there is another episode call me.
Going forward I'm just trying to figure out if I have any clues when one is going to happen and to continue to no be able to drive for more months as you have to be seizure free, for good reason.
